Physical Rehabilitations Impact On World Haemophilia Day

Every year, World Haemophilia Day serves as a reminder of the difficulties faced by people living with bleeding illnesses such as haemophilia. It is also an occasion to highlight perseverance, strength, and advances in treatments and therapies that have enhanced the quality of life for haemophilia patients around the world. Physical rehabilitation, in particular, is critical in enabling people with haemophilia to live their best lives. As we observe World Haemophilia Day, let us look at how physical rehabilitation may alter the lives of those impacted by the disorder.

Understanding Haemophilia:

Haemophilia is a rare hereditary illness marked by the body's inability to effectively coagulate blood. This means that even mild injuries or internal bleeding can cause protracted bleeding episodes, which can be fatal if not treated right away. Haemophilia has historically been linked to high morbidity and death, significantly limiting affected people's activities and life expectancy.

The Role of Physical Rehabilitation

Physical therapy, which is frequently disregarded in conversations about haemophilia management, is an essential component of complete care for people with this condition. It includes a variety of therapies and interventions designed to improve mobility, strength, flexibility, and overall physical function. While conventional techniques concentrated on limiting physical activity to minimize bleeding episodes, new rehabilitation strategies emphasize the relevance of individualized exercise programmes and lifestyle changes to improve health outcomes.

Empowering via Exercise:

Contrary to popular belief, exercise does not worsen bleeding in people with haemophilia. In fact, appropriate physical activity can improve joint health and muscular strength, lowering the risk of bleeds and enhancing general well-being. Individuals can learn to strengthen muscles surrounding weak joints, enhance balance and coordination, and successfully manage pain by performing specific exercises. Furthermore, regular exercise can help to reduce the harmful effects of haemophilia on bone density, which is a typical concern owing to decreased physical activity and recurrent bleeding episodes.

Adapting for Individual Needs:

Personalised treatment is a crucial principle of physical therapy in haemophilia. Each person's treatment plan is adapted to their specific needs, taking into account things like the severity of the ailment, joint state, and overall fitness level. Physical therapists that specialise in haemophilia work closely with patients to build safe and successful exercise regimens, including advice on optimal technique, timing, and progression.

More than just the physical:

Physical rehabilitation has benefits that extend beyond the physical realm, including psychological and social well-being. Living with a chronic disorder, such as haemophilia, can hurt mental health, resulting in feelings of anxiety, sadness, and social isolation. Regular exercise not only boosts mood and self-esteem, but it also builds a sense of community and solidarity among people who face similar struggles. Group exercise sessions and peer support networks are extremely beneficial in fostering resilience and empowerment.

Breaking Through Barriers:

Despite the demonstrated benefits of physical therapy, many people with haemophilia still struggle to get access to specialized care, especially in low-income areas. Economic hurdles, a shortage of skilled healthcare experts, and inadequate infrastructure frequently impede the implementation of complete rehabilitation treatments. To address these gaps, governments, healthcare providers, advocacy organizations, and the broader community must work together to ensure that all people with haemophilia have access to the care they require to thrive.

Conclusion:

On World Haemophilia Day, let us honour the courage, perseverance, and resolve of those living with haemophilia. Physical rehabilitation shines as a beacon of hope, enabling people to overcome obstacles, reclaim their freedom, and live their lives on their terms. By investing in holistic care that prioritizes physical and emotional well-being, we can continue to break down barriers and create a better future for haemophilia patients. Let us work together to make the world a place where everyone, regardless of health, may live with strength and dignity.

By Dr.Ayush Ranjan (Physiotherapist)